Night Trip to the Tower

At about 10:30pm I was just about to go to bed after a lovely but tiring day when my Cisplatin pump started beeping frantically and I looked at the display and noticed it was dead. The damn thing kept beeping without any hints or helpful warnings as to why and so I called Ambulatory care, which is transferred after hours to the main Hospital tower, level 16.

I’m not going to lie, I was feeling fairly stressed and flustered. Charlie told me not to panic but I was just so exhausted by this stage for much rational thought and didn’t know what to do. But of course it was straight-forward: outside clothes on and just pop across the road. Someone stopped us for directions to Euston Station as we were crossing the road. That way, down there.

By this stage the pump was just groaning painfully, the beeping had stopped. I had tried to change the batteries first thing before we left to see if it helped but it didn’t seem to. So over we went. By the time we arrived at the hospital it had gone silent. Dead. It had given up on me entirely.

Nurse Janet came to my rescue as we sat in chairs in the foyer of T16 and tried to work out what was going on. We managed to put the battery back in and turn it on, and it spluttered back to life, but it was saying that the batteries had died and new ones needed to be put in. However once we got it on, it looked like the batteries that had been in it were fine. Seemed to be a problem either with the pump or the battery malfunctioning… How do you even know?

A second nurse came to my rescue also and brought me a cup of tea. Lifesaver. I’ve never been so grateful for a cup of tea! I wish I remembered his name too. Maybe someone out there in the internet can help – senior haematology nurse? T-16? Name started with an A. Art… Something. Geez I really need to work on names! I feel like I’m saying this almost every day now. I want to be able to give shout outs to all my heroes along the way.

Janet went and sourced more batteries and managed to get her hands on an entirely new pump for the Cisplatin. Cover all bases. They got my familiar pretty green file with all my records in it. It made me feel relaxed to see it. Yes, my plastic ring binder with hard copy records inside. They physically make the trip over to the Tower every night along with the Ambulatory Care phone.

Between the four of us we looked and tried to work out how to fiddle with the machine. I didn’t have much idea but I wanted to look on.

Thank you for letting me look over your shoulder Janet and sorry if I was a little bit flustered. But I had absolute faith in you once we got in. And my second nameless-for-now nurse helped work out how to program it to my stats. 71.7 ml of Cisplatin for 4ml/hr. The painstaking process of moving sequentially down from some number in the vast hundreds to just 71.7. Though we had to compromise with the machine with reservoir being set to 72.

We got there. And the pump has been pumping away happily ever since. Thanks for your help, guys. Yeah the first time something goes wrong it’s a bit scary. The first time you have to traipse to the main Hospital after hours with alarms going off. But I’m reassured by the process now. Less unknowns next time.

All in all, another success.

15 Comments Add yours

  1. John Kirby says:

    Poor Jen. What a scary evening. You are surrounded by wonderful people.

    Liked by 1 person

    1. Jen Eve says:

      Help and support as always makes everything ok in the end! Very lucky.


  2. Andrew Taylor says:

    Crikey, better things to do with your evenings eh Jen. As long as your heart keeps a pumpin I reckon you’ll be okay. You did well to stay on track and keep the machine active.
    More experience for you and better equipped to deal with it next time.

    Good advice, Charlie. Don’t panic Mr Mannering Sir. Dad’s Army quote 🙂

    Liked by 1 person

    1. Jen Eve says:

      Hehe heart still going, pump still going, everything intact for now!


  3. Kathy says:

    Poor jen how scary glad you’re OK now xxxxx

    Liked by 1 person

    1. Jen Eve says:

      Made it through another slight adversity! No harm done 😊 very lucky to have such a supportive and helpful Charlie!


      1. Kathy says:

        Glad you have his help we are so proud of him xxxxxx

        Liked by 1 person

      2. Jen Eve says:

        And rightly so! Such a good lad 😊 I’m very lucky.


      3. Andrew Taylor says:

        So lucky, Jen. Charlie is one of the best.
        Can’t wait to shake his hand & buy him a Beer in December.
        Maybe even two 🙂

        Liked by 1 person

      4. Jen Eve says:

        Certainly is. Hehe he’ll like that.


  4. Andrew Taylor says:

    Whoops. I think that should have been Mainwaring Should have checked first 😦

    Liked by 1 person

    1. Jen Eve says:

      Hehe over my head either way!


      1. Andrew Taylor says:

        You don’t know Dads Army !!!!! Shame on you 🙂

        Liked by 1 person

  5. says:

    Pheweeee was a scare. Squeezes for you both xx

    Liked by 1 person

    1. Jen Eve says:

      Thankfully nothing too dire in the end!! Phew indeed. xx


Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s