Pre chemo adventures…

Again, I’ve packed my bag full of clothes for the week. Which clothes are the best to wear when having drugs connected to you for all ours of the day and night? It felt different this time. Four years ago there was a sort of excitement of curiosity for it all. Where would I go?…

Here we go again

There seems to have been some misunderstanding from the post when I said that the cancer is back. I mentioned that when it’s time to die, I will go back to Australia to be with my parents. Some people have taken this to mean now. But I’m not ready to die yet. Please, don’t write…

Hot Wax in Soho

As I tussled with whether I should rest or work on a new magnum opus on Friday night after my re-rediagnosis (geez, that’s catchy), my dear friend Rosa reminded me that since only two nights before, I was onstage in Soho pouring hot wax on a lovely girl named Gemma, I could probably rest. Two…

One year doesn’t feel like long enough…

I’ve had my scans over the last few weeks, leading up to yesterday’s appointment with my Oncologist over the phone. I assumed that since I hadn’t heard anything from my surgeons, it must mean that everything is fine. Though I obviously knew there had been something in my last MRI that had yet to be…

I believe in magic

Way back in January, an article was written about me in the Daily Mail. Another good bit of Osteosarcoma awareness done, cool. A few lovely people contacted me after that who had gone through similar things and hadn’t met anyone else who had, and for the first time, they felt less alone. This is why…

Let me tell you…

…It takes a hell of a lot of self control to not rip your face off while your nerves are trying to work out how they’re going to repair themselves. I know I’ve mentioned it in the past – it’s certainly not my first adventure with damaged nerves, but my goodness, the itchiness is like…

You can’t eat anything for 6 hours prior…

Why is it that when fasting for a scan, all you can think about is food? Or at least a coffee. Tea? I did actually wake up at 6am on scan day so I could have my morning coffee. I accidentally made it too weak and sat there grumbling. Grumble grumble. But I made my…

That Old Game…..

‘There’s something in your last MRI that wasn’t there in the previous one and we’re worried about it.’Doesn’t he know that’s not how the script is meant to go? That I’m meant to get more time before it comes back again?‘Noooooooo….. I didn’t want to hear that!’‘I have to tell you, I’m not going to…

Eye tests, MRIs and not much else to report, really…

I went to get an eye test at an optometrists the other day – protect my one beautiful remaining eye and all – and they asked me 4 times through the process why I’d decided to go get an eye test. I kinda thought it was just something that people did when they felt they…

‘So have you had the vaccine yet?’

I’ve had so many people asking when I’m getting the vaccine. It seems to be at the front of everyone’s mind at the moment (which makes sense) whereas it just feels like a tiny thing in a big ocean of big things for me – somewhat inconsequential compared with the other things going on. I…