Eye tests, MRIs and not much else to report, really…

I went to get an eye test at an optometrists the other day – protect my one beautiful remaining eye and all – and they asked me 4 times through the process why I’d decided to go get an eye test. I kinda thought it was just something that people did when they felt they…

‘So have you had the vaccine yet?’

I’ve had so many people asking when I’m getting the vaccine. It seems to be at the front of everyone’s mind at the moment (which makes sense) whereas it just feels like a tiny thing in a big ocean of big things for me – somewhat inconsequential compared with the other things going on. I…

General anaesthetic, but without the anaesthetic bit…

Well, it’s been a big week. Such a big week that it’s hard to know where to start. I might start at the biggest thing and work back from there. As  you all know from my last couple of posts, after the latest surgery/procedure, I was left mostly unable to speak, as well as not…

The wild life of Jen…

I sneezed my teeth out this morning. How’s your day going?Manage to push them back in and they stayed (sort of) so that’s cool. They’re pretty precarious though. Sneezing is a difficult thing. When you can’t sneeze out of your permanently blocked nose and your face is an open cavity between your nose and your mouth…

Well, I made it through another one… Sort of…

‘So… what did they do?’ My mum asks me the day after the surgery and I realise I’ve forgotten that no one knows. Because I didn’t know what they were going to do until an hour before the surgery.My notes say ‘Removal of obturator and insertion of new prosthesis oral cavity and connection of implants’….

Dear Jen…

Scans are continual, ongoing. Except of course when you’re stranded in Australia for 10 months and they’re all missed. But aside from that, there’s the chest X-rays every three months, and also the PET-CTs and my dreaded MRIs every 3-6. People keep asking me ‘is the cancer gone?’ and I have no answer. The surgeons…

I’m calling to book you in for your pre surgery assessment…

9:30 am Wednesday, I’m out for a walk. The phone rings.Hello?Hello is that Jen?Yes.Hi, I’m from the head and neck admin team. I’m calling to book you in for your pre surgery assessment.My…Assessment. Before your surgery.I’m having surgery?Yes. On the 25th Feb.Oh. First I’ve heard of it. Do you know what surgery?I don’t know. Let…

Eyelids

Amidst all of the information of that week, one other thing was brought to my attention. They’d had to take my eyelids. I was under the impression that they were going to spare them. I was told that this was the best outcome by far, because reconstructing realistic eyelids isn’t really possible. I looked happily…

The Oncologist would like to speak to you…

Through all my cancer adventures thus far, I have had it all mapped out for me. I’ve been told what chemo I needed, what scans to have, what surgery would be done. Great. I’m not the expert, I don’t need to waste my precious energy and headspace on making these decisions, that’s what my medical…

Holding patterns…

The ‘packing change’ surgery knocked me around more than I thought it would. It is the smallest surgery I’ve had, but the ongoing effects of it seemed disproportionately large. Though as my dear friend India pointed out, my benchmark for surgeries is pretty high. So even if this one isn’t as big as others, that…