Chemo Day 4

I still remember the first air bubble I ever had in a line going into me. I’ve seen the hollywood movies – if you want to kill someone, you stab them in the neck with an empty syringe. Air in your blood kills you, right? I panicked when I saw it creeping towards my body…

Chemo week 1

So I was in for 9am on Monday. I was dragging my heels a bit. I left my packing until late on Sunday. Then I stayed in the bath for an extra hour when I probably should have gone to bed in prep for my big week. Then instead of leaving on time on Monday…

Pre chemo adventures…

Again, I’ve packed my bag full of clothes for the week. Which clothes are the best to wear when having drugs connected to you for all ours of the day and night? It felt different this time. Four years ago there was a sort of excitement of curiosity for it all. Where would I go?…

Here we go again

There seems to have been some misunderstanding from the post when I said that the cancer is back. I mentioned that when it’s time to die, I will go back to Australia to be with my parents. Some people have taken this to mean now. But I’m not ready to die yet. Please, don’t write…

Hot Wax in Soho

As I tussled with whether I should rest or work on a new magnum opus on Friday night after my re-rediagnosis (geez, that’s catchy), my dear friend Rosa reminded me that since only two nights before, I was onstage in Soho pouring hot wax on a lovely girl named Gemma, I could probably rest. Two…

One year doesn’t feel like long enough…

I’ve had my scans over the last few weeks, leading up to yesterday’s appointment with my Oncologist over the phone. I assumed that since I hadn’t heard anything from my surgeons, it must mean that everything is fine. Though I obviously knew there had been something in my last MRI that had yet to be…

I believe in magic

Way back in January, an article was written about me in the Daily Mail. Another good bit of Osteosarcoma awareness done, cool. A few lovely people contacted me after that who had gone through similar things and hadn’t met anyone else who had, and for the first time, they felt less alone. This is why…

Let me tell you…

…It takes a hell of a lot of self control to not rip your face off while your nerves are trying to work out how they’re going to repair themselves. I know I’ve mentioned it in the past – it’s certainly not my first adventure with damaged nerves, but my goodness, the itchiness is like…

You can’t eat anything for 6 hours prior…

Why is it that when fasting for a scan, all you can think about is food? Or at least a coffee. Tea? I did actually wake up at 6am on scan day so I could have my morning coffee. I accidentally made it too weak and sat there grumbling. Grumble grumble. But I made my…

That Old Game…..

‘There’s something in your last MRI that wasn’t there in the previous one and we’re worried about it.’Doesn’t he know that’s not how the script is meant to go? That I’m meant to get more time before it comes back again?‘Noooooooo….. I didn’t want to hear that!’‘I have to tell you, I’m not going to…