Well that was… Something…

I recently bought a ‘one line a day’ diary. A few friends had mentioned them and I love the idea of writing a small amount each day and then being able to look back on it. But the only length they make is five years. I looked around for maybe a three year one, which…

Should we take your PICC Line out?

They asked me on my final chemo if I wanted to part with the hardware in my arm. I decided that I should probably keep it a bit longer, just in case I ended up in hospital. Then maybe since I was meant to have an MRI in a month, I should leave it in…

Last cycle, last day

For now. The big overarching ‘for now’. I swing between feeling celebratory about it and feeling rather a sense of foreboding. It’s been such a ruthless chemo and it was only going to be for a short stint, and it does feel amazing to be at the end of it. But while I’ve been coming…

Obligatory ‘back in chemo’ post

Where are we now in this rolling machine? Back in for chemo. Cycle five, second to last cycle of this treatment. Managing to keep to a three-week cycle means that it sort of comes around quickly but also those days of waiting to see if my temperature will send me into hospital feel very long….

I don’t want to jinx it but…

When do you stop holding your breath? Well probably now because word about town is that doing it for too long is unsustainable. But in terms of going to hospital… I haven’t yet. And it’s day 13. When is the point I can safely say if I haven’t gone in yet I won’t be… Probably…

I’m here, and it’s nice to be alive

It’s always some sort of ‘back again’. To chemo, to hospital, or to home. The constant cycle around and around. This time, it’s back again into Ambulatory Care and The Cotton Rooms, my chemo week is on. Except that it’s not a week, not anymore. They’ve cut me down further to only two days. TWO…

Breaking records

Five nights, Five days. That’s all. Then they let me go. Feels quite different from the week and a half of the first hospital admission. Though it is mounting up and I was still incredibly happy to escape. But I digress. Let me skip through a few ‘highlights’. On Friday I was having two packets…

Jen’s window tours of T13

I got my window seat again, and with my favourite view. I could have cried I was so happy. Each time I’m here I seem to have my tour guide duties requested. ‘What’s this big building here?’ A nurse asks, and I have to check twice that we’re talking about the same one. I’m surprised…

Wednesday, 6pm…

*Ring ring*‘Hello, UCLH Urgent care line?’‘Hi, it’s Jen. I just finished chemo last week, and I just spiked a temperature of over 38 and probably have neutropenic sepsis.’‘OK let me ask you some questions. Do you have any problems urinating?’‘No.’‘Does the site of your PICC line look infected?’‘No, no, it’s fine. I’m fine other than…

Back in chemo

Well I’m back in for chemo this week, all my bloods had come out good and ready to go. They’ve decided to knock me back to just three days though. Which was pretty scary to think I’ll only be getting 60% of my chemo each week. But a talk with the Oncologist made me feel…