Taking back control…

Well… following on from yesterday’s post and all the strange official things that are apparently up to me to make decisions for – whether I get access to a certain type of treatment I’m hopefully eligible for and am desperate to have at some point, and then also when I have it; during radio, after…

If You Want To…

So I have these ‘treatment reviews’ every few days listed on my schedule. My paper schedule that I must not lose, that they keep adding to each Friday with my zapping dates for the following week. The wording on my schedule says ‘we will aim to see you prior to your treatment in the head…

What a time to be alive, so they say…

On this blog there are ‘categories’. I wouldn’t expect you to know this, I often forget to even use them. I doubt any of you use them, but they’re there. And I make them for different sections and the idea is that I tag different posts with the same tag to group them. I guess…

Battles… won, I guess!

On Monday I got a message from Rosa saying she was free tomorrow and would I like some company for my zapping? Yes, I would. So off we went. I’d cancelled the dreaded hospital transport so I could walk in, because I was having a call with my bestie in Sydney. So I walked down…

Heading into my first full week…

When I was maybe 16, we spent New Year’s Eve in Napier, New Zealand. A lot of my family are Kiwis so it was the place we went for all our holidays, visiting them all. It’s a pretty nice place, which has been good to me over the years and I’ve had many amazing adventures…

I haven’t died yet…

In fact I’ve been off running around Edinburgh at the Fringe Festival. I booked it when I was well – remember those five or so minutes after I recovered from chemo when I was able to live life again? Yeah, then. Since then, things have gone rapidly downhill. All this business of ‘you might die…

The ‘dreaded’ mask day…

I’d been sort of going back and forth over whether I should try to find someone to take to my radiotherapy mask fitting and scan. I like doing things on my own, just getting on and doing it, having an adventure and then it’s all done. But I was scared. I am scared. These things…

‘Any day now…’

So my initial call with my normal Oncologist seemed OK. I mean, it’s super bad the tumour is progressing, it’s not what anyone wants. But then immediately he said ‘Ok, what shall we do next then, we’ve got a few options, it’s just a matter of finding the right order.’ And it was decided radiotherapy…

Gratitude and music

All of your messages, your comments… I can’t even begin to say how much I appreciate them. Every single one. I’ll hopefully get around to replying to them all, but just… Thank you to everyone who took the time to reach out. I can’t tell you just how spectacular it feels after having to break…

And for my next trick…

I wonder what would have happened if my first thought on that day I got diagnosed 5 years ago, wasn’t to immediately start a blog and write about it? Is that one of those sliding doors moments? Probably not, because I’m sure the thought would have occurred to me eventually, even if I hadn’t gone…