The joy of ongoing appointments

I was talking to someone the other day who was saying that going back to the Macmillan Cancer Centre for appointments is something she fears and finds upsetting. And I get it, there can be a certain sense of PTSD with these things, and constant reminders of the trauma isn’t necessarily what you want. But…

Happy 70th birthday NHS

It is the 70th birthday of the NHS. Where to start? I suppose with something that’s obviously close to me. Looking at cancer alone – 50% of people get cancer. That means you, and your mum. Or your partner and your dad. Or your sister and your best friend. I know of people in the…

Unfortunately… No going home today.

Most importantly, I can’t thank you all enough for your finger crossing, crossing of various limbs, thoughts, hopes, well wishes. Unfortunately cancer/chemo wins this round and I can’t get home for our planned Christmas lunch /day of cheer tomorrow. I was feeling a bit down about it. But we’ll go to the pub for lunch…

Transfusion Friday

Thank you to the person who parted with their blood and gave it to me. I didn’t want your blood but it turns out this time I needed it. Please don’t give me any nasties. I promise I’ll cherish it and use it wisely. It’s a bit silly really isn’t it. I am ok with…

Acetazolamide, alarms and ONE THIRD THROUGH, BABY!!!

Let me tell you about Acetazolamide. So I start taking it 12 hours before my Trex. Pills every 6 hours from midnight the Monday night just before I start. It protects me against Trex toxicity. Great. Love that. I’m onboard.But you know what the trade off is? Pins and needles. In my face. And knee…

Monday, 2.c. Final week of second cycle.

9:20 – First things first, downstairs to the blood people for my Monday blood tests. Catch up on weekends. Be happy we have sun and no hurricane. Everything going so quick today, I guess because I scheduled everything earlier. 9:40 – Head upstairs. I’ve got about 40mins until my appointment with the Oncologist. See Nicola…

Catching up on cycle 2.b (last week’s Methotrexate)

Last Monday I walked into the reception of the main hospital at UCLH and was met by Darth Vader and a whole lot of Stormtroopers. Darth Vader was a bit scary. A Stormtrooper came up and told me we needed a selfie – who am I to say no to the Dark Side?? What fun….

Night Trip to the Tower

At about 10:30pm I was just about to go to bed after a lovely but tiring day when my Cisplatin pump started beeping frantically and I looked at the display and noticed it was dead. The damn thing kept beeping without any hints or helpful warnings as to why and so I called Ambulatory care,…

Mouth ulcers are a bitch.

I get a lot of ulcers in general anyway but let me tell you, you don’t even remotely understand how bad they can be until you have chemo ones!Currently I have three on my lower lip. You can see them, lovely great big white sores.  And that’s nothing compared with what’s going on further back…