Friday surgery retraction statement

You know… I probably jinxed it by telling you all it was happening… But I got a call earlier in the week saying they ‘couldn’t find a consultant’ for Friday. I don’t really understand what that means, I thought it was meant to be my surgeon, Mr K who did it. But I guess maybe…

The joy of ongoing appointments

I was talking to someone the other day who was saying that going back to the Macmillan Cancer Centre for appointments is something she fears and finds upsetting. And I get it, there can be a certain sense of PTSD with these things, and constant reminders of the trauma isn’t necessarily what you want. But…

Monday Monday Monday

And not just any Monday, but one that had the potential to hold news about small white things that go in your mouth and help with things like talking, eating and generally living. Yes. Teeth. After weeks (months overall!!! 7 in fact!) of waiting and chasing, I finally got the call I had been waiting…

What the experts say…

There’s a lot of terminology used when it comes to cancer and I think a lot of us are left to piece together the jargon with the help of Google in order to try and make sense of our condition…

Happy 70th birthday NHS

It is the 70th birthday of the NHS. Where to start? I suppose with something that’s obviously close to me. Looking at cancer alone – 50% of people get cancer. That means you, and your mum. Or your partner and your dad. Or your sister and your best friend. I know of people in the…

The final bits…

With the trachy out, it was time to start breathing through my mouth. My nose was entirely blocked so there was no chance of it helping me out. My mouth got so dry. Night time was the worst. I already wasn’t sleeping much, but now my mouth and throat were dry and burning. And I…

Little adventures

On day 13 of my hospital stay, Kat the Physio said I was allowed to go for a little adventure, so I actually got to leave the ward and we went up to Level 16 and looked out at the view. UCLH has a tall tower, and is situated pretty in the middle of London,…

Trachy tales

While a lot of the point of this post is really to say ‘Kat the Physio is amazing’, because I definitely haven’t given her enough time yet, I feel I also need to talk a little bit more about the Tracheostomy. The concept is great. Hole in the neck to breathe through, so no matter…

Struggles and some gory details…

At this point I was waking up every morning not able to open my eyes, as well as being cold, wet and covered in blood. It was pretty grim. I couldn’t breathe through my nose or close my mouth. I had blood and yellow discharge streaming out of my nose, and blood and saliva running…