I was talking to someone the other day who was saying that going back to the Macmillan Cancer Centre for appointments is something she fears and finds upsetting. And I get it, there can be a certain sense of PTSD with these things, and constant reminders of the trauma isn’t necessarily what you want. But…
Tag: chemo
What the experts say…
There’s a lot of terminology used when it comes to cancer and I think a lot of us are left to piece together the jargon with the help of Google in order to try and make sense of our condition…
Happy 70th birthday NHS
It is the 70th birthday of the NHS. Where to start? I suppose with something that’s obviously close to me. Looking at cancer alone – 50% of people get cancer. That means you, and your mum. Or your partner and your dad. Or your sister and your best friend. I know of people in the…
A note to you all
To all my sarcoma friends who have found their way here, it seriously means so much that you’re reading. You’re all fantastic and inspiring and even if the most we’ve done is smiled and said hi as we’ve passed in the corridor, you’re my family and we’re in this together! I think the world of…
When PET scans turn into surprise MRIs…
I’ve had PET Scans before, all good. They’re not a problem except that it’s always freezing. I had one today, so I went in and they injected me with the radioactive substance and I had to sit there for an hour without using my phone or doing anything really. I listened to an audio book….
Reiki road test
Ok, as promised, it is time to report back on my experience with… REIKI!!! Reiki was basically exactly what I was expecting. But I promise I really did go with an open mind. I went in and was asked to lie down on the bed after a brief introduction. There was some lavender oil diffusing…
MRI Sundays
So it turns out I now have a problem with MRIs. I guess I’m feeling a bit fragile at the moment. A bit emotionally unstable. In a big way because I’ve just found out I’ve got to cancel all plans for the next year or so. But also the fact that I can’t use my…
I wasn’t lying when I said the hard bit was yet to come
I had to go in today for photos so they could build some 3D models of my jaw for surgery. Super cool. The photo guy was really nice. Though he confirmed a few of my worries to be true. The surgery recovery will be huge. Really huge. It will be at least a year before…
Somehow, we have found ourselves at the end of the first part of all of this
No. More. Chemo. It kind of ran up on me suddenly, with all the unknowns of whether I would be finishing my chemo or not. The ending was pretty anticlimactic I suppose. As it was chemo at home, it had been fairly easy. No pumps or 3L/day of water leading up to getting disconnected, no…
And suddenly… it appears I’m on my LAST CHEMO!!!!!!!
So I went into clinic today not knowing where I was at in the whole chemo schedule. I was waiting on test results to see what would happen next. Scenario one: If my kidneys were still struggling, I would have one more chemo (my fave chemo-at-home), starting today. Scenario two: if my heart AND kidneys…
