Of course I didn’t, who does. But now it is just a part of my life. Only for a short time, I hope, I desperately hope it doesn’t come back again. But here we are. But it’s ok, I don’t really mind much. Seriously. Everyone else seems to mind a lot more than I do….
Tag: sarcoma
Oh hi there friends!
I’m baaaaaaaaaack! Slowly. Very slowly. Like… I literally walk at a snail’s pace. It’s hilarious. Anyway. I am currently deeply ensconced in my recovery week. There’s not a lot exciting to report. I spend these days in bed or on the couch, doing nothing. I literally can’t leave the house, I can’t walk anywhere. I’ve…
Night Trip to the Tower
At about 10:30pm I was just about to go to bed after a lovely but tiring day when my Cisplatin pump started beeping frantically and I looked at the display and noticed it was dead. The damn thing kept beeping without any hints or helpful warnings as to why and so I called Ambulatory care,…
Mouth ulcers are a bitch.
I get a lot of ulcers in general anyway but let me tell you, you don’t even remotely understand how bad they can be until you have chemo ones!Currently I have three on my lower lip. You can see them, lovely great big white sores. And that’s nothing compared with what’s going on further back…
Cycle 2a has started!
Today I met a lovely old man while I was waiting for my Monday morning blood test. He had a head of fantastically wayward short fuzzy grey hair. He stopped me and said his had started growing back (I told him it looked fabulous) but he said they were going to take it away again…
Call to action – hit me with your book recommendations!
Ok so Chemo brain is a thing. Even when I’m not too bad, I just have blank spots in my brain. I’ll be talking along fine and either my brain will substitute a word in that is entirely the wrong word, hell it might not even sound the same. Or I’ll just stop and no…
Macmillan Support and Info Centre
This morning I found myself in the Macmillan Support and Info centre. No one had told me it existed or anything about it. There is definitely a breakdown in communication between my team and me… I appear to not be told a lot of things. Maybe that’s normal, but I seem to be expected to…
Delirium and Midnight Alarms
Firstly, before I get to the story from which this post got its name, I hobbled in to the ward on Monday. Hobbled? Yes hobbled. Must have looked an absolute mess. Especially with my bald head too. Someone even moved to give me somewhere to sit on the bus ride down the hill. How come…
Still struggling days later, but appreciating the people around me.
So Friday afternoon I went home. We got an uber. When I got home, there was this incredible collection of gifts waiting for me on the dining room table from my amazing housemate Owen and his girlfriend. Best welcome home present ever. As well as moisturisers, body butter and masks (I have been loving these!),…
Day four and first week of chemo is DONE!
Day four, I woke up tired and in pain. Surprise surprise. My back was starting to hurt from lying down (lots more on this later, unfortunately), and my chest was sore from the chemo pumping in. But there was a light at the end of this tunnel, today I was getting disconnected and going home! Charlie was…
The Cancer Chronicles 