A somewhat disjointed update…

I looked at my eye lashes this morning… there appears to be a bit of a gap in my lower set on my left eye. Well then. I suppose they’ve had enough and are going on holiday. My left eye is also really swollen at the moment and itchy and a bit gross. So really…

I never thought I would get cancer

Of course I didn’t, who does. But now it is just a part of my life. Only for a short time, I hope, I desperately hope it doesn’t come back again. But here we are. But it’s ok, I don’t really mind much. Seriously. Everyone else seems to mind a lot more than I do….

Oh hi there friends!

I’m baaaaaaaaaack! Slowly. Very slowly. Like… I literally walk at a snail’s pace. It’s hilarious. Anyway. I am currently deeply ensconced in my recovery week. There’s not a lot exciting to report. I spend these days in bed or on the couch, doing nothing. I literally can’t leave the house, I can’t walk anywhere. I’ve…

Night Trip to the Tower

At about 10:30pm I was just about to go to bed after a lovely but tiring day when my Cisplatin pump started beeping frantically and I looked at the display and noticed it was dead. The damn thing kept beeping without any hints or helpful warnings as to why and so I called Ambulatory care,…

Mouth ulcers are a bitch.

I get a lot of ulcers in general anyway but let me tell you, you don’t even remotely understand how bad they can be until you have chemo ones!Currently I have three on my lower lip. You can see them, lovely great big white sores.  And that’s nothing compared with what’s going on further back…

Cycle 2a has started!

Today I met a lovely old man while I was waiting for my Monday morning blood test. He had a head of fantastically wayward short fuzzy grey hair. He stopped me and said his had started growing back (I told him it looked fabulous) but he said they were going to take it away again…

Call to action – hit me with your book recommendations!

Ok so Chemo brain is a thing. Even when I’m not too bad, I just have blank spots in my brain. I’ll be talking along fine and either my brain will substitute a word in that is entirely the wrong word, hell it might not even sound the same. Or I’ll just stop and no…

Macmillan Support and Info Centre 

This morning I found myself in the Macmillan Support and Info centre. No one had told me it existed or anything about it. There is definitely a breakdown in communication between my team and me… I appear to not be told a lot of things. Maybe that’s normal, but I seem to be expected to…

Delirium and Midnight Alarms

Firstly, before I get to the story from which this post got its name, I hobbled in to the ward on Monday. Hobbled? Yes hobbled. Must have looked an absolute mess. Especially with my bald head too. Someone even moved to give me somewhere to sit on the bus ride down the hill. How come…

Methotrexate!!!

Methotrexate is seriously a walk in the park compared to my lovely Cisplatin/Doxorubicin combo from the first week. I mean… I guess I should start from the beginning. So I come in on the Monday and I have to be here for pre appointments with literally everyone, checks, talks, find out about my drugs, etc….