This week I met with a 4th year medical student who needed someone to use for a case study. You mean I can be the centre of attention and talk about myself? Oh ok! He was nice. We had fun. I’ll see him again sometime. On Thursday I stopped in to grab my lunch at…
Category: treatment
Transfusion Friday
Thank you to the person who parted with their blood and gave it to me. I didn’t want your blood but it turns out this time I needed it. Please don’t give me any nasties. I promise I’ll cherish it and use it wisely. It’s a bit silly really isn’t it. I am ok with…
Another Cisplatin down…
There is a photo of me from when I was little, sitting in the middle of my parents bed. My little figure propped up, with a big quilt spreading out on the bed around me. This is how I felt when I got home last night. I climbed straight into my bed, under all the…
Acetazolamide, alarms and ONE THIRD THROUGH, BABY!!!
Let me tell you about Acetazolamide. So I start taking it 12 hours before my Trex. Pills every 6 hours from midnight the Monday night just before I start. It protects me against Trex toxicity. Great. Love that. I’m onboard.But you know what the trade off is? Pins and needles. In my face. And knee…
Monday, 2.c. Final week of second cycle.
9:20 – First things first, downstairs to the blood people for my Monday blood tests. Catch up on weekends. Be happy we have sun and no hurricane. Everything going so quick today, I guess because I scheduled everything earlier. 9:40 – Head upstairs. I’ve got about 40mins until my appointment with the Oncologist. See Nicola…
Catching up on cycle 2.b (last week’s Methotrexate)
Last Monday I walked into the reception of the main hospital at UCLH and was met by Darth Vader and a whole lot of Stormtroopers. Darth Vader was a bit scary. A Stormtrooper came up and told me we needed a selfie – who am I to say no to the Dark Side?? What fun….
Uh… did you just say blood transfusion??
So I had my usual Monday appointments yesterday. First Doctor, then Pharmacist, then up to Ambicare to get things sorted. I had my bloods taken on Friday so that meant I didn’t have to have it done on Monday morning this week. I had a different doctor this time – sarcomas are usually treated in teams….
Night Trip to the Tower
At about 10:30pm I was just about to go to bed after a lovely but tiring day when my Cisplatin pump started beeping frantically and I looked at the display and noticed it was dead. The damn thing kept beeping without any hints or helpful warnings as to why and so I called Ambulatory care,…
Cycle 2a has started!
Today I met a lovely old man while I was waiting for my Monday morning blood test. He had a head of fantastically wayward short fuzzy grey hair. He stopped me and said his had started growing back (I told him it looked fabulous) but he said they were going to take it away again…
Delirium and Midnight Alarms
Firstly, before I get to the story from which this post got its name, I hobbled in to the ward on Monday. Hobbled? Yes hobbled. Must have looked an absolute mess. Especially with my bald head too. Someone even moved to give me somewhere to sit on the bus ride down the hill. How come…