‘Alternatives’

So today we had a handyman around to fix the lock on our bathroom door and one of our light switches. They were popping out to pick up some things and asked if I was going to be home, and I said ‘yeah, I’m currently recovering from chemotherapy, so I ain’t really going anywhere’ and…

New Year updates

Now that all of the excitement of Christmas is over and my parents are gone, it’s time to do some reflecting. December was a big month. I turned 30, I had the worst few weeks of my life health wise (physical and mental health) when I was feeling so terrible and going through so much…

Unfortunately… No going home today.

Most importantly, I can’t thank you all enough for your finger crossing, crossing of various limbs, thoughts, hopes, well wishes. Unfortunately cancer/chemo wins this round and I can’t get home for our planned Christmas lunch /day of cheer tomorrow. I was feeling a bit down about it. But we’ll go to the pub for lunch…

Well I was hoping to avoid hospital again… But here I am…

My Methotrexate levels are meant to be 20 but they’re currently 93… Wow. That’s a bit crazy!!! So I’ve been admitted. To UCLH and not Whittington at least. And hopefully not for too long at all! And not in my own room because I’m essentially healthy otherwise! Just not part of my plan. And I…

A post of gratitude.

You know what has been amazing? My friends and family, and really anyone who I have come in contact with. The support I have received through this all is overwhelming. I find it difficult to have things done for me, to accept help. I’ve always been staunchly independent. But the offers to help from all…

Emergency blood transfusions!!!

So I came in this morning for a quick pre-chemo blood test, expecting to be in and out quickly. I wanted to check what my platelets and neutrophils were doing so my friend the Australian nurse Charlie said to hang around and they’d be able to tell me the results in about 20 mins time….

Escape from my incarceration

I’ve been quiet I know. Apologies. Time for an update! Monday I was still in hospital. I had a visit first from two doctors who might have been from ICU… I forget. But one of them lived in Sydney for 3 years, in Manly. Her husband is from Newport, literally just down the hill from…

Things are looking better today.

So I had a visit from the doctor this morning saying they think the infection probably isn’t in my PICC line after all. It’s still a possibility, and I’m still worried about one of the lumens now not working as well. But she apologised for the other doctors barging in all guns blazing yesterday. Yes,…