Firstly, chemo is go! My platelets were behaving. Still low but behaving. So now I have this amazing 2 days of chemo at home! Super easy, I just carry around my little ‘baby’s bottle’ as they call it, which slowly diffuses into me over 46 hours! It’s like a big strong rubber balloon that deflates and squeezes it all in. No pumps, no 3L of water, all super easy. I pop in on Sunday afternoon to get disconnected again!
The bad news… It turns out I’ve still got 2 more rounds of self-injections. And no one to do them for me anymore.
Which also means I’m still at risk of going back to A&E too (i.e. being neutropenic, getting a temperature, picking up an infection like the last two times).
BUT only 7 injections each time, so 14 in total. I can do that, right? My amazing housemate Owen said if I really can’t do it, he would give it a go! I could not love him more. But surprisingly I am feeling empowered by it. And I got to briefly catch up with my sarcoma friend Katrina on Friday which was awesome (she is super awesome, I love our chats. Catching up with her makes me happy) and she gave me some super good tips for the injections so I am excited to try them! BRING IT ON!!!!!!!!!!!!! I’VE TOTALLY GOT THIS!!!!!!!!!
I’m hoping it’s less likely that I’ll be going back to hospital with this one, as it shouldn’t knock me around as much as having it with the Cisplatin too. But I obviously will need to be avoiding public transport and public places for at least a week.
In other news it looks very much like I won’t be able to have any more Methothrexate. I am getting another Gfr test (kidney test) just to double check that my kidneys haven’t miraculously bounced back, but they probably wouldn’t have.
I have been assured they will though. If i had more Trex, it would cause irreversible damage. But for now, it will recover over time. Thank goodness they are so good on testing everything and tweaking the schedule. The Oncologists don’t seem at all worried about me not being able to finish the Trex so that’s reassuring.
I have another Echocardiogram coming up too just to check my heart is going fine with the Doxorubicin before I go into my last one.
So… I can’t believe I’m saying this, but if the Trex is in fact off, that means I finish this 2 days of chemo at home, then spend a week or so recovering (hopefully without another trip to hospital), then in 4 weeks I do it again, and then…
Like… can you believe it? Then about 4 weeks after that it’ll be surgery time! That’s like… So close.
So now to just get to there as smoothly as possible! Over the course of this whole thing, I have only been in hospital 3 times (apart from occasionally having to pop in for scans of course). And I want to keep it at that, thank you. Except for adding one more for surgery of course. But let’s stay away until then! Can’t believe the end of this is actually in sight. I mean the surgery is going to be brutal and huge. But… it’s the end. Wow.
For now, here is a photo of my chemo diffusing into me, and one of it coming home on the bus with me!