There is a photo of me from when I was little, sitting in the middle of my parents bed. My little figure propped up, with a big quilt spreading out on the bed around me. This is how I felt when I got home last night. I climbed straight into my bed, under all the…
Tag: chemotherapy
Acetazolamide, alarms and ONE THIRD THROUGH, BABY!!!
Let me tell you about Acetazolamide. So I start taking it 12 hours before my Trex. Pills every 6 hours from midnight the Monday night just before I start. It protects me against Trex toxicity. Great. Love that. I’m onboard.But you know what the trade off is? Pins and needles. In my face. And knee…
Monday, 2.c. Final week of second cycle.
9:20 – First things first, downstairs to the blood people for my Monday blood tests. Catch up on weekends. Be happy we have sun and no hurricane. Everything going so quick today, I guess because I scheduled everything earlier. 9:40 – Head upstairs. I’ve got about 40mins until my appointment with the Oncologist. See Nicola…
Catching up on cycle 2.b (last week’s Methotrexate)
Last Monday I walked into the reception of the main hospital at UCLH and was met by Darth Vader and a whole lot of Stormtroopers. Darth Vader was a bit scary. A Stormtrooper came up and told me we needed a selfie – who am I to say no to the Dark Side?? What fun….
…Heroes!
I’ve been seeing things about ‘carers’ for people with cancer. Like… paid carers are a thing sure, but also partners, parents, probably children in some cases, maybe friends… Still makes me think more of terminal people who are slowly dying and need constant care. Probably mostly what this term is meant to mean. Though to…
Uh… did you just say blood transfusion??
So I had my usual Monday appointments yesterday. First Doctor, then Pharmacist, then up to Ambicare to get things sorted. I had my bloods taken on Friday so that meant I didn’t have to have it done on Monday morning this week. I had a different doctor this time – sarcomas are usually treated in teams….
I never thought I would get cancer
Of course I didn’t, who does. But now it is just a part of my life. Only for a short time, I hope, I desperately hope it doesn’t come back again. But here we are. But it’s ok, I don’t really mind much. Seriously. Everyone else seems to mind a lot more than I do….
Oh hi there friends!
I’m baaaaaaaaaack! Slowly. Very slowly. Like… I literally walk at a snail’s pace. It’s hilarious. Anyway. I am currently deeply ensconced in my recovery week. There’s not a lot exciting to report. I spend these days in bed or on the couch, doing nothing. I literally can’t leave the house, I can’t walk anywhere. I’ve…
Night Trip to the Tower
At about 10:30pm I was just about to go to bed after a lovely but tiring day when my Cisplatin pump started beeping frantically and I looked at the display and noticed it was dead. The damn thing kept beeping without any hints or helpful warnings as to why and so I called Ambulatory care,…
Mouth ulcers are a bitch.
I get a lot of ulcers in general anyway but let me tell you, you don’t even remotely understand how bad they can be until you have chemo ones!Currently I have three on my lower lip. You can see them, lovely great big white sores. And that’s nothing compared with what’s going on further back…
The Cancer Chronicles 