Friday surgery retraction statement

You know… I probably jinxed it by telling you all it was happening… But I got a call earlier in the week saying they ‘couldn’t find a consultant’ for Friday. I don’t really understand what that means, I thought it was meant to be my surgeon, Mr K who did it. But I guess maybe…

Off we go again…

Hello everyone, I know I’ve been quiet for a bit, it’s been cold, I’ve been busy and my parents have been visiting for a few weeks. I’ve been ticking along as usual, a few things you would probably appreciate an update on. I had my clinic appointment a couple of weeks ago to get my…

What the experts say…

There’s a lot of terminology used when it comes to cancer and I think a lot of us are left to piece together the jargon with the help of Google in order to try and make sense of our condition…

The final bits…

With the trachy out, it was time to start breathing through my mouth. My nose was entirely blocked so there was no chance of it helping me out. My mouth got so dry. Night time was the worst. I already wasn’t sleeping much, but now my mouth and throat were dry and burning. And I…

Little adventures

On day 13 of my hospital stay, Kat the Physio said I was allowed to go for a little adventure, so I actually got to leave the ward and we went up to Level 16 and looked out at the view. UCLH has a tall tower, and is situated pretty in the middle of London,…

Trachy tales

While a lot of the point of this post is really to say ‘Kat the Physio is amazing’, because I definitely haven’t given her enough time yet, I feel I also need to talk a little bit more about the Tracheostomy. The concept is great. Hole in the neck to breathe through, so no matter…

Meet my Surgeons (otherwise known as best friends)

I think it is time to introduce you all to my surgeons. These guys honestly became my life line, they felt like my best friends – visiting me each day, telling me things were going well… I knew they were looking out for me. They didn’t all visit me every time, sometimes a lot of…

Struggles and some gory details…

At this point I was waking up every morning not able to open my eyes, as well as being cold, wet and covered in blood. It was pretty grim. I couldn’t breathe through my nose or close my mouth. I had blood and yellow discharge streaming out of my nose, and blood and saliva running…

The second trip to the ward in 3 days…

When I was transferred to the ward for the second time in 3 days, I was back in a shared ward. Thankfully this time there was no one wailing all night like there had been the time before (I remember writing to my nurse saying ‘just give her sleeping tablets and give me sleeping tablets…