Hello everyone, I know I’ve been quiet for a bit, it’s been cold, I’ve been busy and my parents have been visiting for a few weeks. I’ve been ticking along as usual, a few things you would probably appreciate an update on.
I had my clinic appointment a couple of weeks ago to get my MRI results and the day before I got a call asking if some of my blood could be collected for research. Yes yes yes yes research! Always yes! So I went along early to get my blood taken. There was a new staff member who was being supervised by another, but she assured me she was very experienced. Not that it bothered me too much but I gave my usual disclaimer that my veins are difficult. They assured me there would be no issue. Cool. We’ll see.
She tried one arm and found the vein but my blood didn’t want to leave me. Aww my blood has separation anxiety. Cute. She asked if she could try again. Of course. Better luck this time. She got the needle in my hand and it started slowly filling the tube but then it stopped flowing and started hurting quite a bit.
‘The vein is going to blow!’ She announced with a wavering voice. I looked at the other nurse and she looked at me with what looked like a slightly worried face. I looked down to see my vein bulging.
Wait, did she say it’s going to… ‘Blow…?’
‘It’s bleeding under the skin… I need get it out…’
Ya… safe to say the blood rushed away from my head then. Or to it? Either way I felt very hot and faint. I’m sure that’s a perfectly normal thing to happen but it’s just not what you need to be told when you’re already in pain and stressed. So she stopped and I lay down.
Then of course I was annoyed because I had failed at helping with research. Lots of apologising from them, from me, good fun. I went and had a little cry in the bathroom, stressed by the situation and frustrated that I couldn’t help. I went back out to wait for my clinic appointment and a little while later the nurse came and apologised again (as did I) and she gave me a haematology pin to say thanks. That was sweet, I like pins.
I made a friend while waiting to see my Oncologist, he had also had a face sarcoma. Twice. We were laughing about all the random body parts we have in our face. It’s a strange club to be in. You know you’re with people who get it when you can call someone ‘greedy’ for having cancer twice and have a laugh about it.
Everything went smoothly with Mr Onc. ‘Nothing in your lungs’
‘Oh that’s good! But I thought you said…’
‘It looked like something but it wasn’t. Or at least if it is, I don’t know what it is yet so I’ll see you in 3 months and we’ll look again’
Ha. Good. Bye. ‘I like not seeing you very often’ I said as I shook his hand and scurried out.
He also said to me ‘this summer will be two years since diagnosis, won’t it!!’ I didn’t believe him and said ‘No surgery was only a year ago’. He looked at me weirdly and was like ‘yes…… And you had treatment before that……’ LOL yes he’s right.
Well apart from that, I’ve got the first of my teeth surgeries on April 12th. We’ll find out then what will be possible (I think? It sounds likely…) and then hopefully if I’m lucky and everything goes quickly and according to plan, by the end of the year I might be ready to look at some sort of teeth thing! Though that’s probably being a bit hopeful, these things usually take a lot longer, mainly because it takes so long to hand write, print and send letters in order for any process to get moving.
Yes this is good news, and I’m so glad to have some progress! But I’d rather avoid comments of ‘that’s amazing, soon you’ll look all better’ and the like. Or ‘wow teeth in April!’ Because it will still be a while until I actually get them, whatever they may be. I don’t know how I will look, I don’t know how much they can do (if anything), and although I am optimistic for the best, I need to manage expectations, both yours and mine. So we’ll see. Progress is good. Let’s see what happens next in this crazy adventure shall we?
Hilariously, I went along to my ‘pre-assessment clinic’, which I thought would be when I’d find out what they’re going to do in this surgery I’ve got coming up next week. But the nurse and anaesthetist who were running the meeting were asking me questions like: ‘Who is doing your surgery? Are you staying in overnight? What are they planning on doing?’
The anaesthetist even asked how long my surgery was meant to go for! Ummmmm………. You’re asking ME? Well that’s reassuring.
No one has told me anything about this surgery, I was kind of hoping that they were going to at this meeting. I hope by the time I get there on Friday they’ve worked out the answers to those questions because if not, well… I might end up with an amputated leg, or less one kidney or something. I guess I don’t really need two kidneys if it comes to that.
What I have pieced together from talking to random (non medical) people around the place is that they’re just going to drill in a bit and cover it back over for 6 months. But I guess I’ll let you know in a couple of weeks if that’s the case. I have no idea how disruptive it will be, how long I’ll be in hospital (I think just the one day?), or what the recovery will be like. I hear it will be swollen and sore but obviously nothing like what I’ve already been through so I’m not too bothered.
I’ll keep you all posted! Until we next speak, have a great week!