So where am I at right now?

When I was about 7, I went to a gymnastics day at my local sports hall. For some reason I put sunscreen on… perhaps it was the day before that I put it on? Perhaps I’m mixing my memories, but this feels right. That day I found out I was allergic to sunscreen. Banana Boat,…

Surgery part 2

I think we tend to build up our medical professionals as wizards, magicians, Gods. And in a way, they are. The work that they are doing is beyond belief, and I have gone into my surgeries with complete trust in these people, putting my life in their hands. Lay-people have said to me all along…

Surgery part 1

Well I don’t know about you, but I was getting tired of the will-they-won’t-they game when it comes to implant surgeries and cancellations. After the last cancellations they said there would be nothing in the foreseeable future. Yay. So I was back onto waiting, and I tried to put it out of my mind. When…

Friday surgery retraction statement

You know… I probably jinxed it by telling you all it was happening… But I got a call earlier in the week saying they ‘couldn’t find a consultant’ for Friday. I don’t really understand what that means, I thought it was meant to be my surgeon, Mr K who did it. But I guess maybe…

Off we go again…

Hello everyone, I know I’ve been quiet for a bit, it’s been cold, I’ve been busy and my parents have been visiting for a few weeks. I’ve been ticking along as usual, a few things you would probably appreciate an update on. I had my clinic appointment a couple of weeks ago to get my…

What the experts say…

There’s a lot of terminology used when it comes to cancer and I think a lot of us are left to piece together the jargon with the help of Google in order to try and make sense of our condition…

The final bits…

With the trachy out, it was time to start breathing through my mouth. My nose was entirely blocked so there was no chance of it helping me out. My mouth got so dry. Night time was the worst. I already wasn’t sleeping much, but now my mouth and throat were dry and burning. And I…

Little adventures

On day 13 of my hospital stay, Kat the Physio said I was allowed to go for a little adventure, so I actually got to leave the ward and we went up to Level 16 and looked out at the view. UCLH has a tall tower, and is situated pretty in the middle of London,…

Trachy tales

While a lot of the point of this post is really to say ‘Kat the Physio is amazing’, because I definitely haven’t given her enough time yet, I feel I also need to talk a little bit more about the Tracheostomy. The concept is great. Hole in the neck to breathe through, so no matter…