Thank you to the person who parted with their blood and gave it to me. I didn’t want your blood but it turns out this time I needed it. Please don’t give me any nasties. I promise I’ll cherish it and use it wisely. It’s a bit silly really isn’t it. I am ok with…
Tag: sarcoma
A brief stay in hospital… Another new experience to tick off the list…
So yeah I’m in hospital. I’ve never been in hospital before. I’m not sure I’ve been missing out, but it’s ok I guess. And I’ve got my own private room! Palatial! Well, I’m sharing it with Clarence the cow of course. Feeling fine (chemo side effects aside), don’t panic everyone. Like actually… people don’t seem…
Another Cisplatin down…
There is a photo of me from when I was little, sitting in the middle of my parents bed. My little figure propped up, with a big quilt spreading out on the bed around me. This is how I felt when I got home last night. I climbed straight into my bed, under all the…
The slightly harrowing lead up to my diagnosis…
Something I haven’t written about here yet is how it came to my attention that there was something wrong with me. I know I’ve spoken about a dental specialist breaking the news of the big C-A-N-C-E-R word to me, and I obviously have a big lump on my face. But it had to start somewhere….
Acetazolamide, alarms and ONE THIRD THROUGH, BABY!!!
Let me tell you about Acetazolamide. So I start taking it 12 hours before my Trex. Pills every 6 hours from midnight the Monday night just before I start. It protects me against Trex toxicity. Great. Love that. I’m onboard.But you know what the trade off is? Pins and needles. In my face. And knee…
Monday, 2.c. Final week of second cycle.
9:20 – First things first, downstairs to the blood people for my Monday blood tests. Catch up on weekends. Be happy we have sun and no hurricane. Everything going so quick today, I guess because I scheduled everything earlier. 9:40 – Head upstairs. I’ve got about 40mins until my appointment with the Oncologist. See Nicola…
Catching up on cycle 2.b (last week’s Methotrexate)
Last Monday I walked into the reception of the main hospital at UCLH and was met by Darth Vader and a whole lot of Stormtroopers. Darth Vader was a bit scary. A Stormtrooper came up and told me we needed a selfie – who am I to say no to the Dark Side?? What fun….
…Heroes!
I’ve been seeing things about ‘carers’ for people with cancer. Like… paid carers are a thing sure, but also partners, parents, probably children in some cases, maybe friends… Still makes me think more of terminal people who are slowly dying and need constant care. Probably mostly what this term is meant to mean. Though to…
Uh… did you just say blood transfusion??
So I had my usual Monday appointments yesterday. First Doctor, then Pharmacist, then up to Ambicare to get things sorted. I had my bloods taken on Friday so that meant I didn’t have to have it done on Monday morning this week. I had a different doctor this time – sarcomas are usually treated in teams….
A somewhat disjointed update…
I looked at my eye lashes this morning… there appears to be a bit of a gap in my lower set on my left eye. Well then. I suppose they’ve had enough and are going on holiday. My left eye is also really swollen at the moment and itchy and a bit gross. So really…
The Cancer Chronicles 