Guess what? I did my injection this morning LIKE AN ABSOLUTE BOSS!!! Katrina, if you are reading this, you are my hero, your tips were an absolute lifesaver!!! So when they told me how to do my injections initially, they just sort of demonstrated it with the needle, without actually doing it. They told me…
Tag: osteosarcoma
Chemo at home is fun!
Well. Firstly, chemo is go! My platelets were behaving. Still low but behaving. So now I have this amazing 2 days of chemo at home! Super easy, I just carry around my little ‘baby’s bottle’ as they call it, which slowly diffuses into me over 46 hours! It’s like a big strong rubber balloon that…
Side effects – Neuropathy
So… I now have peripheral neuropathy, thanks to that last dose of the meanie Cisplatin. Immediately after I had it, I got numb feet. They weren’t too bad, just quite fuzzy. Not quite pins and needles and not quite actual numbness. They’re just… Fuzzy. All of the time. Then when I spoke to my Oncologist…
A day filled with bombshells.
Today was a big day. I met with the surgeon who was 2 hours late to see me… So that was fun. He (and his team) dropped a couple of bombshells. I might not be able to sing after the surgery. Like… Ever. Or at least it might change my voice… I’ll have a scar…
I’m sick but I’m pretty, yeah!
Thank you all for the kind words on my previous post. You’re all amazing. As promised, for anyone who hasn’t seen it yet and is interested (I think a lot of you will have seen it by now ), here is the link to our little Christmas Day jam: https://www.youtube.com/watch?v=CXH_7Nkvmnw&feature=youtu.be We had a lot of…
Unfortunately… No going home today.
Most importantly, I can’t thank you all enough for your finger crossing, crossing of various limbs, thoughts, hopes, well wishes. Unfortunately cancer/chemo wins this round and I can’t get home for our planned Christmas lunch /day of cheer tomorrow. I was feeling a bit down about it. But we’ll go to the pub for lunch…
The roller coaster ride that puts me in the ward… then puts me back in the Cotton Rooms the next day… But now we need home tomorrow please!!!
So… This is going to be a bit of a roller coaster. post. This morning kind of went from bad to worse… My hopes to get out tomorrow (Friday) in time for our Christmas lunch on Saturday were slowly to rapidly slipping away from me. And my hopes to get out of the ward and…
A post of gratitude.
You know what has been amazing? My friends and family, and really anyone who I have come in contact with. The support I have received through this all is overwhelming. I find it difficult to have things done for me, to accept help. I’ve always been staunchly independent. But the offers to help from all…
Emergency blood transfusions!!!
So I came in this morning for a quick pre-chemo blood test, expecting to be in and out quickly. I wanted to check what my platelets and neutrophils were doing so my friend the Australian nurse Charlie said to hang around and they’d be able to tell me the results in about 20 mins time….
Escape from my incarceration
I’ve been quiet I know. Apologies. Time for an update! Monday I was still in hospital. I had a visit first from two doctors who might have been from ICU… I forget. But one of them lived in Sydney for 3 years, in Manly. Her husband is from Newport, literally just down the hill from…
The Cancer Chronicles 