Anaesthesia isn’t for me. Though I’m not sure 16 hours of it is really for anyone. But to be fair, I had a fun time going in to it. But I’ll rewind a little. I had stayed in the ward on the Sunday night before my surgery. They had taken out my PICC line a…
Tag: osteosarcoma
Woah hey look, she lives!
I can only apologise for my radio silence. I know none of you would blame me for a moment, but I’m sure you have all been concerned, intrigued, interested… Some combination of all of the above, maybe some other things too. I have not been up to writing at all, and I’m still not. But…
SURGERY MONDAY IS GO!
I always really liked the receptionist in the oncology clinic, but I haven’t been back there in a while. Yesterday I went to surgery clinic and she was there. ‘Jen!’ She called out happily and asked me take a seat That made me smile. I had some meetings with the Speech therapist (Lucy) and the…
A note to you all
To all my sarcoma friends who have found their way here, it seriously means so much that you’re reading. You’re all fantastic and inspiring and even if the most we’ve done is smiled and said hi as we’ve passed in the corridor, you’re my family and we’re in this together! I think the world of…
CPET issues and successes
So I went in on Friday for a CPET. Basically, it’s a fitness test. I cycle on a bike, they see if my heart can withstand surgery. Sounds simple enough. I went in and they checked my haemoglobin and it was too low to do the test. Wait, let’s backtrack a bit. I’m missing important…
Surgeon meeting take 2
So I met with the surgeon today. We’re aiming for surgery on the 5th of March. That’s soon. When will I find out if that’s going ahead? Hopefully Tuesday. 5 days before I would be going to hospital. Plenty of time for my parents to book tickets to come over, right? Found out I’ll be…
When PET scans turn into surprise MRIs…
I’ve had PET Scans before, all good. They’re not a problem except that it’s always freezing. I had one today, so I went in and they injected me with the radioactive substance and I had to sit there for an hour without using my phone or doing anything really. I listened to an audio book….
Reiki road test
Ok, as promised, it is time to report back on my experience with… REIKI!!! Reiki was basically exactly what I was expecting. But I promise I really did go with an open mind. I went in and was asked to lie down on the bed after a brief introduction. There was some lavender oil diffusing…
MRI Sundays
So it turns out I now have a problem with MRIs. I guess I’m feeling a bit fragile at the moment. A bit emotionally unstable. In a big way because I’ve just found out I’ve got to cancel all plans for the next year or so. But also the fact that I can’t use my…
I wasn’t lying when I said the hard bit was yet to come
I had to go in today for photos so they could build some 3D models of my jaw for surgery. Super cool. The photo guy was really nice. Though he confirmed a few of my worries to be true. The surgery recovery will be huge. Really huge. It will be at least a year before…
The Cancer Chronicles 