So… it’s Saturday, and yeah I’m still here in hospital. How long for? I honestly don’t know. I’m hoping to be out tomorrow but I don’t really know. Prior to all of this, I had never spent any time in hospitals at all. And to be fair, this is the first time I’ve really spent…
Tag: nhs
A brief stay in hospital… Another new experience to tick off the list…
So yeah I’m in hospital. I’ve never been in hospital before. I’m not sure I’ve been missing out, but it’s ok I guess. And I’ve got my own private room! Palatial! Well, I’m sharing it with Clarence the cow of course. Feeling fine (chemo side effects aside), don’t panic everyone. Like actually… people don’t seem…
Acetazolamide, alarms and ONE THIRD THROUGH, BABY!!!
Let me tell you about Acetazolamide. So I start taking it 12 hours before my Trex. Pills every 6 hours from midnight the Monday night just before I start. It protects me against Trex toxicity. Great. Love that. I’m onboard.But you know what the trade off is? Pins and needles. In my face. And knee…
Monday, 2.c. Final week of second cycle.
9:20 – First things first, downstairs to the blood people for my Monday blood tests. Catch up on weekends. Be happy we have sun and no hurricane. Everything going so quick today, I guess because I scheduled everything earlier. 9:40 – Head upstairs. I’ve got about 40mins until my appointment with the Oncologist. See Nicola…
Catching up on cycle 2.b (last week’s Methotrexate)
Last Monday I walked into the reception of the main hospital at UCLH and was met by Darth Vader and a whole lot of Stormtroopers. Darth Vader was a bit scary. A Stormtrooper came up and told me we needed a selfie – who am I to say no to the Dark Side?? What fun….
Uh… did you just say blood transfusion??
So I had my usual Monday appointments yesterday. First Doctor, then Pharmacist, then up to Ambicare to get things sorted. I had my bloods taken on Friday so that meant I didn’t have to have it done on Monday morning this week. I had a different doctor this time – sarcomas are usually treated in teams….
Night Trip to the Tower
At about 10:30pm I was just about to go to bed after a lovely but tiring day when my Cisplatin pump started beeping frantically and I looked at the display and noticed it was dead. The damn thing kept beeping without any hints or helpful warnings as to why and so I called Ambulatory care,…
Mouth ulcers are a bitch.
I get a lot of ulcers in general anyway but let me tell you, you don’t even remotely understand how bad they can be until you have chemo ones!Currently I have three on my lower lip. You can see them, lovely great big white sores. And that’s nothing compared with what’s going on further back…
Cycle 2a has started!
Today I met a lovely old man while I was waiting for my Monday morning blood test. He had a head of fantastically wayward short fuzzy grey hair. He stopped me and said his had started growing back (I told him it looked fabulous) but he said they were going to take it away again…
Call to action – hit me with your book recommendations!
Ok so Chemo brain is a thing. Even when I’m not too bad, I just have blank spots in my brain. I’ll be talking along fine and either my brain will substitute a word in that is entirely the wrong word, hell it might not even sound the same. Or I’ll just stop and no…
The Cancer Chronicles 