Transfusion Friday

Thank you to the person who parted with their blood and gave it to me. I didn’t want your blood but it turns out this time I needed it. Please don’t give me any nasties. I promise I’ll cherish it and use it wisely. It’s a bit silly really isn’t it. I am ok with…

Some good news to share!! And some news that makes Jen grumpy…

Well. I am happy to share with you the good news I received yesterday… From the results of my PET scan, they were able to see that the cancer is responding to the chemo! Still waiting for the MRI to get the complete picture, but  it won’t tell a different story. This means chemo is…

My good old friend, pain

So they put this cannula in my hand because they thought there miiiight be an infection in my PICC line (of course there isn’t, but you can’t blame them for trying to cover all bases). Yeah, it hurt going in. Yeah, it hurts all the time it is in, either just a dull ache, or…

Hopefully my last night in hospital…

Wow so. I had my fantastic stay when I was first admitted to the hospital in the Mary Seacole Ward, but that is only for the first 24-72 hours after admission from A&E. As soon as I was assessed and my neutrophils were a safer level, it was time to transfer me to another ward….

My latest lot of friends

So… it’s Saturday, and yeah I’m still here in hospital. How long for? I honestly don’t know. I’m hoping to be out tomorrow but I don’t really know. Prior to all of this, I had never spent any time in hospitals at all. And to be fair, this is the first time I’ve really spent…

A brief stay in hospital… Another new experience to tick off the list…

So yeah I’m in hospital. I’ve never been in hospital before. I’m not sure I’ve been missing out, but it’s ok I guess. And I’ve got my own private room! Palatial! Well, I’m sharing it with Clarence the cow of course. Feeling fine (chemo side effects aside), don’t panic everyone. Like actually… people don’t seem…

Acetazolamide, alarms and ONE THIRD THROUGH, BABY!!!

Let me tell you about Acetazolamide. So I start taking it 12 hours before my Trex. Pills every 6 hours from midnight the Monday night just before I start. It protects me against Trex toxicity. Great. Love that. I’m onboard.But you know what the trade off is? Pins and needles. In my face. And knee…

Monday, 2.c. Final week of second cycle.

9:20 – First things first, downstairs to the blood people for my Monday blood tests. Catch up on weekends. Be happy we have sun and no hurricane. Everything going so quick today, I guess because I scheduled everything earlier. 9:40 – Head upstairs. I’ve got about 40mins until my appointment with the Oncologist. See Nicola…

Catching up on cycle 2.b (last week’s Methotrexate)

Last Monday I walked into the reception of the main hospital at UCLH and was met by Darth Vader and a whole lot of Stormtroopers. Darth Vader was a bit scary. A Stormtrooper came up and told me we needed a selfie – who am I to say no to the Dark Side?? What fun….

Uh… did you just say blood transfusion??

So I had my usual Monday appointments yesterday. First Doctor, then Pharmacist, then up to Ambicare to get things sorted. I had my bloods taken on Friday so that meant I didn’t have to have it done on Monday morning this week. I had a different doctor this time – sarcomas are usually treated in teams….