#scancitement – my version of #scanxiety

This post probably has more relevance for my cancer friends and family, the rest of you might not quite understand what I’m going on about, but please bear with me. Here is an insight into the world of regular scans. You might have heard (well… read…) me say before, I don’t get #scanxiety. I don’t…

What the experts say…

There’s a lot of terminology used when it comes to cancer and I think a lot of us are left to piece together the jargon with the help of Google in order to try and make sense of our condition…

Happy 70th birthday NHS

It is the 70th birthday of the NHS. Where to start? I suppose with something that’s obviously close to me. Looking at cancer alone – 50% of people get cancer. That means you, and your mum. Or your partner and your dad. Or your sister and your best friend. I know of people in the…

Surgeon meeting take 2

So I met with the surgeon today. We’re aiming for surgery on the 5th of March. That’s soon. When will I find out if that’s going ahead? Hopefully Tuesday. 5 days before I would be going to hospital. Plenty of time for my parents to book tickets to come over, right? Found out I’ll be…

So… I’ve had a very big day.

Maybe my biggest. I hardly even know how to start. So they’ve been taking blood cultures to see if any bacteria grow, and it turns out in one of the cultures they grew something. They think there’s an infection in my PICC Line, which they told me yesterday they can just give me the antibiotics,…

The slightly harrowing lead up to my diagnosis…

Something I haven’t written about here yet is how it came to my attention that there was something wrong with me. I know I’ve spoken about a dental specialist breaking the news of the big C-A-N-C-E-R word to me, and I obviously have a big lump on my face. But it had to start somewhere….

Methotrexate!!!

Methotrexate is seriously a walk in the park compared to my lovely Cisplatin/Doxorubicin combo from the first week. I mean… I guess I should start from the beginning. So I come in on the Monday and I have to be here for pre appointments with literally everyone, checks, talks, find out about my drugs, etc….

All the tests…

So today was MRI, Ultrasound and CT scan. I didn’t find the MRI bad at least. Before starting, they had to put a cannula in my arm. She said I had ‘well used veins’ and I wondered if she thought I was a drug addict. She then asked if I’d had a lot of blood tests…

When you first find out about chemo…

So yesterday was fun. Turns out I need chemotherapy. And then surgery. Chemo is going to be… insane. I start with a one-off session of three full days, then I have three weeks off for my body to build back up again. And then I start my cycles – four days a week for three…

First meeting with the Oncologist

Today I’m meeting with my oncologist. He’s a specialist in rare sarcomas. That’s good, I feel! I’m not sure what he’s going to say to me. I’m taking my boyfriend along for moral support. On Monday I have all my scans – CT, MRI and an ultrasound, and we’ll find if it’s spread to my…