Well hi!

I’ve got a couple of posts lined up for you but I thought first, since you haven’t heard from me in a while, I should give a quick update. Though to be fair the reason you haven’t heard from me for a while is because I literally have nothing to update you on. Well that’s…

The joy of ongoing appointments

I was talking to someone the other day who was saying that going back to the Macmillan Cancer Centre for appointments is something she fears and finds upsetting. And I get it, there can be a certain sense of PTSD with these things, and constant reminders of the trauma isn’t necessarily what you want. But…

#scancitement – my version of #scanxiety

This post probably has more relevance for my cancer friends and family, the rest of you might not quite understand what I’m going on about, but please bear with me. Here is an insight into the world of regular scans. You might have heard (well… read…) me say before, I don’t get #scanxiety. I don’t…

CPET issues and successes

So I went in on Friday for a CPET. Basically, it’s a fitness test. I cycle on a bike, they see if my heart can withstand surgery. Sounds simple enough. I went in and they checked my haemoglobin and it was too low to do the test. Wait, let’s backtrack a bit. I’m missing important…

When PET scans turn into surprise MRIs…

I’ve had PET Scans before, all good. They’re not a problem except that it’s always freezing. I had one today, so I went in and they injected me with the radioactive substance and I had to sit there for an hour without using my phone or doing anything really. I listened to an audio book….

MRI Sundays

So it turns out I now have a problem with MRIs. I guess I’m feeling a bit fragile at the moment. A bit emotionally unstable. In a big way because I’ve just found out I’ve got to cancel all plans for the next year or so. But also the fact that I can’t use my…

Updates and side effects

Lots of info here! Maybe not the most exciting post but hey, here we go! On Friday I went in for my blood test expecting my haemoglobin to be low (they booked me in for a transfusion because they thought it would be. I was right on the borderline so… yay!!! Didn’t have to!!!), and…

Emergency blood transfusions!!!

So I came in this morning for a quick pre-chemo blood test, expecting to be in and out quickly. I wanted to check what my platelets and neutrophils were doing so my friend the Australian nurse Charlie said to hang around and they’d be able to tell me the results in about 20 mins time….

Trex week wrap up

This week I met with a 4th year medical student who needed someone to use for a case study. You mean I can be the centre of attention and talk about myself? Oh ok! He was nice. We had fun. I’ll see him again sometime. On Thursday I stopped in to grab my lunch at…

Some good news to share!! And some news that makes Jen grumpy…

Well. I am happy to share with you the good news I received yesterday… From the results of my PET scan, they were able to see that the cancer is responding to the chemo! Still waiting for the MRI to get the complete picture, but  it won’t tell a different story. This means chemo is…