So I went in for my biopsy. I had to get in for the 7am admission, though I knew my surgery wouldn’t be happening until around midday. The nurses tried to tell me I was up first so had to get ready, but I said I didn’t think that was likely. I got moved around…
Category: Tests
Phone calls and all…
Everyone seems to be having recurrences at the moment. Seriously, it’s everywhere! My heart goes out to everyone who has been having bad news. As if 2020 needed to be more of a shit show… I’ve had increasing pain in my face, and over the past month I’ve been losing the sight in my right…
I’m Back! And straight back into it…
So I am back in London! I managed to get a flight. We’re in lockdown now, which is interesting. It’s definitely a whole different vibe over here to what it was in Australia. But it’s nice to be home. Straight back into scans to check out what’s going on in my face. Life is a…
The joy of ongoing appointments
I was talking to someone the other day who was saying that going back to the Macmillan Cancer Centre for appointments is something she fears and finds upsetting. And I get it, there can be a certain sense of PTSD with these things, and constant reminders of the trauma isn’t necessarily what you want. But…
#scancitement – my version of #scanxiety
This post probably has more relevance for my cancer friends and family, the rest of you might not quite understand what I’m going on about, but please bear with me. Here is an insight into the world of regular scans. You might have heard (well… read…) me say before, I don’t get #scanxiety. I don’t…
CPET issues and successes
So I went in on Friday for a CPET. Basically, it’s a fitness test. I cycle on a bike, they see if my heart can withstand surgery. Sounds simple enough. I went in and they checked my haemoglobin and it was too low to do the test. Wait, let’s backtrack a bit. I’m missing important…
When PET scans turn into surprise MRIs…
I’ve had PET Scans before, all good. They’re not a problem except that it’s always freezing. I had one today, so I went in and they injected me with the radioactive substance and I had to sit there for an hour without using my phone or doing anything really. I listened to an audio book….
MRI Sundays
So it turns out I now have a problem with MRIs. I guess I’m feeling a bit fragile at the moment. A bit emotionally unstable. In a big way because I’ve just found out I’ve got to cancel all plans for the next year or so. But also the fact that I can’t use my…
Updates and side effects
Lots of info here! Maybe not the most exciting post but hey, here we go! On Friday I went in for my blood test expecting my haemoglobin to be low (they booked me in for a transfusion because they thought it would be. I was right on the borderline so… yay!!! Didn’t have to!!!), and…