I once went and saw this very expensive ‘specialist’ on recommendation from some friends as a last ditch effort to fix my shoulder pain. He was… A chiropractor and acupuncturist and… some sort of voodoo man. I mean I’m already sceptical of chiropractors – I have been warned of them by physios before that they’re…
Tag: sarcoma
What a difference a day can make…
And what a difference the sun can make. And today it shone bravely down, daring to dry out the sodden lawns, reinvigorate the flowers, foxes and squirrels, and of course…me! And today I ventured bravely out, spurred on by yesterday’s success. And it appears to have strengthened me. No pauses walking down the hill, no…
Venturing out…
So I was all set to head into work today – I’d built up to it, mentally prepared myself, rested (not that it makes a difference, my exhaustion isn’t linked at all to how much sleep I’ve had or how much I’ve rested, but hey! Maybe it helps a bit). Then as I was all…
Updates and side effects
Lots of info here! Maybe not the most exciting post but hey, here we go! On Friday I went in for my blood test expecting my haemoglobin to be low (they booked me in for a transfusion because they thought it would be. I was right on the borderline so… yay!!! Didn’t have to!!!), and…
Thoughts.
I’ve been feeling a little bit sorry for myself this week. I accidentally came across some statistics about 5-year survival rates for people diagnosed with sarcoma (I had avoided these sorts of stats), and they’re not exactly inspiring. But I know these sorts of stats are not useful. They’re not specific to me, they don’t…
Self-injections, you don’t scare me no more!
Guess what? I did my injection this morning LIKE AN ABSOLUTE BOSS!!! Katrina, if you are reading this, you are my hero, your tips were an absolute lifesaver!!! So when they told me how to do my injections initially, they just sort of demonstrated it with the needle, without actually doing it. They told me…
Chemo at home is fun!
Well. Firstly, chemo is go! My platelets were behaving. Still low but behaving. So now I have this amazing 2 days of chemo at home! Super easy, I just carry around my little ‘baby’s bottle’ as they call it, which slowly diffuses into me over 46 hours! It’s like a big strong rubber balloon that…
Side effects – Neuropathy
So… I now have peripheral neuropathy, thanks to that last dose of the meanie Cisplatin. Immediately after I had it, I got numb feet. They weren’t too bad, just quite fuzzy. Not quite pins and needles and not quite actual numbness. They’re just… Fuzzy. All of the time. Then when I spoke to my Oncologist…
A day filled with bombshells.
Today was a big day. I met with the surgeon who was 2 hours late to see me… So that was fun. He (and his team) dropped a couple of bombshells. I might not be able to sing after the surgery. Like… Ever. Or at least it might change my voice… I’ll have a scar…
Unfortunately… No going home today.
Most importantly, I can’t thank you all enough for your finger crossing, crossing of various limbs, thoughts, hopes, well wishes. Unfortunately cancer/chemo wins this round and I can’t get home for our planned Christmas lunch /day of cheer tomorrow. I was feeling a bit down about it. But we’ll go to the pub for lunch…