So I went in on Friday for a CPET. Basically, it’s a fitness test. I cycle on a bike, they see if my heart can withstand surgery. Sounds simple enough. I went in and they checked my haemoglobin and it was too low to do the test. Wait, let’s backtrack a bit. I’m missing important…
Tag: sarcoma
Surgeon meeting take 2
So I met with the surgeon today. We’re aiming for surgery on the 5th of March. That’s soon. When will I find out if that’s going ahead? Hopefully Tuesday. 5 days before I would be going to hospital. Plenty of time for my parents to book tickets to come over, right? Found out I’ll be…
When PET scans turn into surprise MRIs…
I’ve had PET Scans before, all good. They’re not a problem except that it’s always freezing. I had one today, so I went in and they injected me with the radioactive substance and I had to sit there for an hour without using my phone or doing anything really. I listened to an audio book….
Reiki road test
Ok, as promised, it is time to report back on my experience with… REIKI!!! Reiki was basically exactly what I was expecting. But I promise I really did go with an open mind. I went in and was asked to lie down on the bed after a brief introduction. There was some lavender oil diffusing…
I wasn’t lying when I said the hard bit was yet to come
I had to go in today for photos so they could build some 3D models of my jaw for surgery. Super cool. The photo guy was really nice. Though he confirmed a few of my worries to be true. The surgery recovery will be huge. Really huge. It will be at least a year before…
Somehow, we have found ourselves at the end of the first part of all of this
No. More. Chemo. It kind of ran up on me suddenly, with all the unknowns of whether I would be finishing my chemo or not. The ending was pretty anticlimactic I suppose. As it was chemo at home, it had been fairly easy. No pumps or 3L/day of water leading up to getting disconnected, no…
And suddenly… it appears I’m on my LAST CHEMO!!!!!!!
So I went into clinic today not knowing where I was at in the whole chemo schedule. I was waiting on test results to see what would happen next. Scenario one: If my kidneys were still struggling, I would have one more chemo (my fave chemo-at-home), starting today. Scenario two: if my heart AND kidneys…
Phlebotomist fights
This morning I had a fight with a phlebotomist. They’re the people who take your blood. So I go down to the blood people on days when I’m starting chemo to get everything tested to see if I’m ok to start. It was a lady I hadn’t seen before. She got everything out to take…
Stupid fingers
This morning I made a delicious looking bowl of yoghurt with strawberries, passionfruit and nectarine. I chopped them all up and mixed them in together. And then dropped the bowl when I picked it up. I have no feeling in my fingers anymore, it has rapidly declined in the past week. Typing is hard. Holding…
Another of those reflective moments
It is always useful to remember in life that there is always someone worse off than you. Always someone who has it worse. Not in an ‘I’m glad there’s someone suffering worse than me’ kind of way. I mean I don’t want anyone to suffer. Especially not from anything really bad. It’s hard to hear…
The Cancer Chronicles 