Taking stock of the damage post surgery #2

So when I woke up from surgery #2, it seemed like a good time to take stock of what had happened to me over the past week, physically. Let me relay it to you. So in the original surgery, they took the bone, some muscle and the blood supply out of my shoulder/back – the…

Friday turns to Saturday and back into surgery we went

I’d been having regular checks of the flap (the new roof of my mouth made from shoulder) – they would look at it, feel it for temperature, then use a ‘Doppler’ machine on it, which would amplify the sound of its pulse. Somewhere over the course of Thursday night the Doppler machine got misplaced. When…

A few of the amazing nurses on my first trip to ICU

The first thing was to work out a way to communicate with people. How else would I make friends? The first notebook Dad got for me said on the front ‘Be your own kind of beautiful’. Seemed fitting, since I would definitely be challenging the normal ideas of ‘beautiful’ for some time (someone did just…

The wonders of anaesthetic

Anaesthesia isn’t for me. Though I’m not sure 16 hours of it is really for anyone. But to be fair, I had a fun time going in to it. But I’ll rewind a little. I had stayed in the ward on the Sunday night before my surgery. They had taken out my PICC line a…

Woah hey look, she lives!

I can only apologise for my radio silence. I know none of you would blame me for a moment, but I’m sure you have all been concerned, intrigued, interested… Some combination of all of the above, maybe some other things too. I have not been up to writing at all, and I’m still not. But…

Last minute thoughts on this surgery

I’m not like… Worrying about this surgery. I mean… I know the risks. I know it’s huge. I know it could end up being even bigger than they expect. I know things could go wrong. But I’m not lying awake at night worrying. There’s no good in me worrying about it. It’s not like a…

Surgeon meeting take 2

So I met with the surgeon today. We’re aiming for surgery on the 5th of March. That’s soon. When will I find out if that’s going ahead? Hopefully Tuesday. 5 days before I would be going to hospital. Plenty of time for my parents to book tickets to come over, right? Found out I’ll be…

When PET scans turn into surprise MRIs…

I’ve had PET Scans before, all good. They’re not a problem except that it’s always freezing. I had one today, so I went in and they injected me with the radioactive substance and I had to sit there for an hour without using my phone or doing anything really. I listened to an audio book….

Reiki road test

Ok, as promised, it is time to report back on my experience with… REIKI!!! Reiki was basically exactly what I was expecting. But I promise I really did go with an open mind. I went in and was asked to lie down on the bed after a brief introduction. There was some lavender oil diffusing…

I wasn’t lying when I said the hard bit was yet to come

I had to go in today for photos so they could build some 3D models of my jaw for surgery. Super cool. The photo guy was really nice. Though he confirmed a few of my worries to be true. The surgery recovery will be huge. Really huge. It will be at least a year before…