Teeth thoughts and important (non cancer related) meetings…

People’s reaction to me wanting teeth is interesting. Most people are in the camp of ‘of course, it must be SO difficult without teeth’ but occasionally voicing my desperate wish for teeth gets brushed off with an ‘oh, that’s not an issue, teeth don’t really matter, you’ll get them when you get them’. I’m not…

The future is looking bright

‘Jen, you’re my last patient so you’re going to have to wait a bit.’ Said Deepti as she took in another patient. I smiled. That’s fine, obviously. To be honest I was just really happy to know it was her I would be seeing. ‘Don’t worry, it’s all good’ she said with a thumbs up….

The dreaded MRI. Again.

So as part of my ongoing monitoring, I have to have an MRI. Every two months. If you’ve been following along, you might remember that I enjoyed my first two MRIs but then managed to develop a crippling anxiety on my third. So two-monthly MRIs are not high on my list of things I want…

‘So… What’s the prognosis?’

It’s a thing people ask. Like ‘are you going to live or die?’ Like people are watching tv show and want to know the ending. It’s funny to think of your own life in that way… Two sides of a precarious scale. Well… we don’t know the ending. There’s no blood test to see if…

So send your love…

Additional to the ongoing things I’m having to deal with that I mentioned in my previous post, is the itching. When I came out of surgery, pretty much my whole face was numb. Nerve damage. I was told it would come back, but it would take time. After a few days, parts of my numb…

Time for an update I think

It’s hard work, all of this ‘recovery’ business! It’s now 9 weeks since I went in to hospital and 7 weeks since I got out. I’m starting to feel a little bit better. Each day I have to do a whole stream of exercises for my shoulder, which I must repeat multiple times throughout the…

The challenges that being home presented…

And so it was that two weeks and one day after the first of my major surgeries, I was allowed to go home. And you know what? It was hard work. Really hard work. It was such a relief, and I was finally able to relax for the first time in 2 weeks, and it…

Well I was hoping to avoid hospital again… But here I am…

My Methotrexate levels are meant to be 20 but they’re currently 93… Wow. That’s a bit crazy!!! So I’ve been admitted. To UCLH and not Whittington at least. And hopefully not for too long at all! And not in my own room because I’m essentially healthy otherwise! Just not part of my plan. And I…

My good week and my HAIR SHAVING PARTY!!!

Once I started feeling better, I had a great week! I had to pass up on going to my favourite festival (which involved camping in the middle of a forest, but I just wasn’t well enough), so Charlie and I stayed home for a well needed restful long weekend, but we sent Ange off to…

Nice moments from the first week of chemo

Well before I go on and talk about my recovery and the two weeks between chemo, there are a few little bits and pieces to throw in from the first week. First story: the bath My room at the Cotton Rooms had a bath. Anyone who knows me knows that I LOVE baths. But I’m…