Pre chemo adventures…

Again, I’ve packed my bag full of clothes for the week. Which clothes are the best to wear when having drugs connected to you for all ours of the day and night? It felt different this time. Four years ago there was a sort of excitement of curiosity for it all. Where would I go?…

Here we go again

There seems to have been some misunderstanding from the post when I said that the cancer is back. I mentioned that when it’s time to die, I will go back to Australia to be with my parents. Some people have taken this to mean now. But I’m not ready to die yet. Please, don’t write…

Hot Wax in Soho

As I tussled with whether I should rest or work on a new magnum opus on Friday night after my re-rediagnosis (geez, that’s catchy), my dear friend Rosa reminded me that since only two nights before, I was onstage in Soho pouring hot wax on a lovely girl named Gemma, I could probably rest. Two…

I believe in magic

Way back in January, an article was written about me in the Daily Mail. Another good bit of Osteosarcoma awareness done, cool. A few lovely people contacted me after that who had gone through similar things and hadn’t met anyone else who had, and for the first time, they felt less alone. This is why…

Let me tell you…

…It takes a hell of a lot of self control to not rip your face off while your nerves are trying to work out how they’re going to repair themselves. I know I’ve mentioned it in the past – it’s certainly not my first adventure with damaged nerves, but my goodness, the itchiness is like…

That Old Game…..

‘There’s something in your last MRI that wasn’t there in the previous one and we’re worried about it.’Doesn’t he know that’s not how the script is meant to go? That I’m meant to get more time before it comes back again?‘Noooooooo….. I didn’t want to hear that!’‘I have to tell you, I’m not going to…

‘So have you had the vaccine yet?’

I’ve had so many people asking when I’m getting the vaccine. It seems to be at the front of everyone’s mind at the moment (which makes sense) whereas it just feels like a tiny thing in a big ocean of big things for me – somewhat inconsequential compared with the other things going on. I…

The wild life of Jen…

I sneezed my teeth out this morning. How’s your day going?Manage to push them back in and they stayed (sort of) so that’s cool. They’re pretty precarious though. Sneezing is a difficult thing. When you can’t sneeze out of your permanently blocked nose and your face is an open cavity between your nose and your mouth…

Well, I made it through another one… Sort of…

‘So… what did they do?’ My mum asks me the day after the surgery and I realise I’ve forgotten that no one knows. Because I didn’t know what they were going to do until an hour before the surgery.My notes say ‘Removal of obturator and insertion of new prosthesis oral cavity and connection of implants’….

Dear Jen…

Scans are continual, ongoing. Except of course when you’re stranded in Australia for 10 months and they’re all missed. But aside from that, there’s the chest X-rays every three months, and also the PET-CTs and my dreaded MRIs every 3-6. People keep asking me ‘is the cancer gone?’ and I have no answer. The surgeons…