The nurses

The nurses on my ward have been phenomenal. I’ve only had one or two European nurses this time, which I’m sure has been less than previously (I can’t help but have Brexit in mind), a few have been British, and a lot have been from the Philippines. They’ve all been lovely, and it’s felt like…

What just happened……..?

A whirlwind comes into my bay and the curtains are pulled closed around us.In front of me stand three people.‘Do you remember me? Do you recognise me? Do you know who I am?’ Says the one who is clearly in charge. It takes me a long time to recognise anyone in hospital Even if they’re…

Some quiet after the treatment and birthday storm…

Side effects to report… I’ve been very tachycardic (fast heart rate) Nausea and vomiting Weird nerve twinges in hands (a new type of neuropathy I’ve not had before) Exhaustion Can’t go more than a few steps without being completely out of breath My eyesight has been deteriorating too – I’ve known of it to happen…

Chemo Day 4

I still remember the first air bubble I ever had in a line going into me. I’ve seen the hollywood movies – if you want to kill someone, you stab them in the neck with an empty syringe. Air in your blood kills you, right? I panicked when I saw it creeping towards my body…

Chemo week 1

So I was in for 9am on Monday. I was dragging my heels a bit. I left my packing until late on Sunday. Then I stayed in the bath for an extra hour when I probably should have gone to bed in prep for my big week. Then instead of leaving on time on Monday…

Pre chemo adventures…

Again, I’ve packed my bag full of clothes for the week. Which clothes are the best to wear when having drugs connected to you for all ours of the day and night? It felt different this time. Four years ago there was a sort of excitement of curiosity for it all. Where would I go?…

Here we go again

There seems to have been some misunderstanding from the post when I said that the cancer is back. I mentioned that when it’s time to die, I will go back to Australia to be with my parents. Some people have taken this to mean now. But I’m not ready to die yet. Please, don’t write…

Hot Wax in Soho

As I tussled with whether I should rest or work on a new magnum opus on Friday night after my re-rediagnosis (geez, that’s catchy), my dear friend Rosa reminded me that since only two nights before, I was onstage in Soho pouring hot wax on a lovely girl named Gemma, I could probably rest. Two…

I believe in magic

Way back in January, an article was written about me in the Daily Mail. Another good bit of Osteosarcoma awareness done, cool. A few lovely people contacted me after that who had gone through similar things and hadn’t met anyone else who had, and for the first time, they felt less alone. This is why…

Let me tell you…

…It takes a hell of a lot of self control to not rip your face off while your nerves are trying to work out how they’re going to repair themselves. I know I’ve mentioned it in the past – it’s certainly not my first adventure with damaged nerves, but my goodness, the itchiness is like…