So… I went on BBC…

So I had a bit of an exciting day yesterday, you might have seen on my various social media accounts (or the tele for that matter) but if you haven’t… I went on live TV. On BBC2. On the Victoria Derbyshire show. Oh my goodness. The day started with meeting my two Macmillan support team…

What the experts say…

There’s a lot of terminology used when it comes to cancer and I think a lot of us are left to piece together the jargon with the help of Google in order to try and make sense of our condition…

On the Fringe…

I went to the Edinburgh Fringe festival a couple of weekends ago with my dear friend Shiri. It was brilliant. We caught up with Katie’s (my bestie who was visiting recently) friend Sam who I met while Katie was here and I loved her so we’re friends now. She’s an actress and we caught her…

MRI and all that

I suppose I should let you all know that I got a call saying there is nothing ominous in my MRI! Yay! To be honest, I had forgot about it, people kept asking me if I had heard and it took me a while to think what I was waiting to hear about. ‘you must…

So I finally met with my surgeon…

It was a busy day actually. I had to go in first for a chest x-ray. This is one of those things I have to have every two months. You see, the most common mets for osteosarcoma (look at me with my cancer vernacular. Mets = metastasis = spread) is to the lungs. So we keep…

Another MRI survived and the impending referral for…

So I was filling out my MRI form last Friday and one of the questions was: ‘Have you had any operations on any part of your body in the last 3 months?’ I went to say yes… Of course I have… remember that big thing that happened in March? But… wait… No! No i haven’t! In…

Let’s talk jaw stretching!

And let’s also add ‘jaw stretching’ to the list of things you don’t think of having to deal with… So last time I went to surgery clinic, Deepti asked how my jaw opening was going. It was ok. The last I time I had it measured it was ’30’. I’m presuming that’s mm. Apparently 35…

A word about coping…

I look at those pictures of me in the hospital, you know the ones. And it’s almost like I can’t remember them. Like they didn’t happen to me. My mind has done some funny things about that time. It tells me of conversations I had with people, when I know I couldn’t talk. I suppose…

I couldn’t avoid it forever – cancer meets religion

I was hanging out in The Living Room in the Macmillan Centre a couple of months ago, waiting for my clinic appointment when I got chatting to a guy who was likewise wasting time like I was. I’m not sure why we got talking, but we did. It’s not an uncommon occurrence in the Living…

FAQ

There are a few things that I get asked fairly often, so I thought I would put together answers to some of them. Why are you so tired? Someone asked me the other day why I’m so tired, why it’s taking so long to build up my strength. It’s a fair question. I wonder too….