Chemo at home is fun!

Well.

Firstly, chemo is go! My platelets were behaving. Still low but behaving. So now I have this amazing 2 days of chemo at home! Super easy, I just carry around my little ‘baby’s bottle’ as they call it, which slowly diffuses into me over 46 hours! It’s like a big strong rubber balloon that deflates and squeezes it all in. No pumps, no 3L of water, all super easy. I pop in on Sunday afternoon to get disconnected again!

The bad news… It turns out I’ve still got 2 more rounds of self-injections. And no one to do them for me anymore.

Which also means I’m still at risk of going back to A&E too (i.e. being neutropenic, getting a temperature, picking up an infection like the last two times).

BUT only 7 injections each time, so 14 in total. I can do that, right? My amazing housemate Owen said if I really can’t do it, he would give it a go! I could not love him more. But surprisingly I am feeling empowered by it. And I got to briefly catch up with my sarcoma friend Katrina on Friday which was awesome (she is super awesome, I love our chats. Catching up with her makes me happy) and she gave me some super good tips for the injections so I am excited to try them! BRING IT ON!!!!!!!!!!!!! I’VE TOTALLY GOT THIS!!!!!!!!!

I’m hoping it’s less likely that I’ll be going back to hospital with this one, as it shouldn’t knock me around as much as having it with the Cisplatin too. But I obviously will need to be avoiding public transport and public places for at least a week.

In other news it looks very much like I won’t be able to have any more Methothrexate. I am getting another Gfr test (kidney test) just to double check that my kidneys haven’t miraculously bounced back, but they probably wouldn’t have.

I have been assured they will though. If i had more Trex, it would cause irreversible damage. But for now, it will recover over time. Thank goodness they are so good on testing everything and tweaking the schedule. The Oncologists don’t seem at all worried about me not being able to finish the Trex so that’s reassuring.

I have another Echocardiogram coming up too just to check my heart is going fine with the Doxorubicin before I go into my last one.

So… I can’t believe I’m saying this, but if the Trex is in fact off, that means I finish this 2 days of chemo at home, then spend a week or so recovering (hopefully without another trip to hospital), then in 4 weeks I do it again, and then…

I

Am

Finished

Chemo.

Like… can you believe it? Then about 4 weeks after that it’ll be surgery time! That’s like… So close.

So now to just get to there as smoothly as possible! Over the course of this whole thing, I have only been in hospital 3 times (apart from occasionally having to pop in for scans of course). And I want to keep it at that, thank you. Except for adding one more for surgery of course. But let’s stay away until then! Can’t believe the end of this is actually in sight. I mean the surgery is going to be brutal and huge. But… it’s the end. Wow.

For now, here is a photo of my chemo diffusing into me, and one of it coming home on the bus with me!

8 Comments Add yours

  1. John Kirby says:

    What great news Jen. And even better to sense you are so delighted yourself with the END in sight. You are so good. Love.

    Like

    1. Jen Eve says:

      It’s getting so close I can almost taste it!!! Whatever it is… champagne, I’m sure! Lots of it! 🙂

      Like

  2. Jen Kibble says:

    Almost there Jen, 💕xxx

    Like

    1. Jen Eve says:

      Getting so close!!! 😁

      Like

  3. Donna Congalton says:

    So cool. You are so close Jenna. Loving the positivity and the news your kidneys will bounce back. Yay for tests ( and your strength) 😗

    Like

    1. Jen Eve says:

      Getting there!!! Yeah it is good news. Another kidney test on Monday to check them again. Brilliant that they’re so on it!

      Like

  4. Kat says:

    This is good! I like this!
    As far as the injections go you’ll be right, thing is to try not to over think it, just do it and then it’s done (speaking from experience here – not google dr!).
    💜💜

    Like

    1. Jen Eve says:

      Yeah!!! I like it too!!
      Thankfully I think I’m getting on top of these injections! And you’re right – taking my mind off it when the needle goes in makes all the difference! Not overthinking at all, just calmly putting it in.

      Like

Leave a comment