So I had a visit from the doctor this morning saying they think the infection probably isn’t in my PICC line after all. It’s still a possibility, and I’m still worried about one of the lumens now not working as well. But she apologised for the other doctors barging in all guns blazing yesterday. Yes, none of that needed to happen. I get that they thought they needed to act quickly, but they were basing their facts on information that was wrong – someone told them it wasn’t possible to get blood from my PICC line, which I have no idea where that came from because no one had any problems, and the blood results were incorrect, my haemoglobin did not drop to 30 overnight.
I saw Rainer again today and for some reason they thought things were really dire yesterday. I get that my levels of things were low (more on that in a minute) but aside from that, I have no idea why, but it seems they didn’t manage to get their information straight on all counts before running in and giving me the special treatment. But I get that they thought they had to work fast. And that they didn’t realise what chaos would ensue.
I think I really needed those platelets. I no longer have blood coming out of my nose whenever I blow it, so that’s a relief!
All my levels are slowly going back up, they’re giving me potassium, calcium, magnesium, sodium, um… I think that’s it? They were all dangerously low. And platelets. So they’re going back up now.
ALSO I MANAGED TO EAT ALL MY LUNCH TODAY! First food I’ve managed since Tuesday. Mouth ulcers are on the out guys!
I hardly slept last night because they were poking me with things all night, but I got a few hours. I’m tired, but feeling good. I’ll still be here for a couple more days while we wait for my neutrophils to go back up and all my levels to look better. Fingers crossed it’s Tuesday, I’ve got a gig to go to Tuesday night!
The Cancer Chronicles 
Good to hear they are getting an understanding of things Jenna. Must be such a concern when you’ve got different aspect coming at you. I guess it is times like that the most important thing is you are able to keep your wits about you and you were strong enough to say no when you knew that what they were suggesting is wrong (taking picc line out). Keep it up and we will be sending you those good vibes so you are out and able to go to the gig Tuesday. ♡♡♡
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It’s hard to suggest that the Doctors might be wrong! But sometimes they are, and it’s important to not let them jump into anything unnecessarily! I am slowly recovering from the experience, but my arm is only just starting to heal! What an ordeal! But I will survive!
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Hi Jen,
I’m glad things are better for you today and I hope they keep improving. Our positivity will get you out on Tuesday night. I’m working hard at it. I do have a funny for you. As you know, here in Aus, many of you over there think of us as being upside down. This follows through and true for nosebleeds. At school. we would always put the ice pack on the back of the child’s neck, tilt the head forward to prevent it going down the throat and pinch the bridge of the nose tightly. Obviously where you are upside down to us, it is different! Haha!
Hang in there. love Jane
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Hahaha that silly Australia, everything back to front!!
Your positivity worked well! I wasn’t well enough to go to the gig unfortunately but I was out at least! 🙂
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So happy to walk you up Highgate Hill today and open the doors to your flat.
So hope you are able to stay infection free and your temperature stays normal.
Onwards & Upwards from here, Jen.
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Always onwards and upwards!!!!! Only way to go
Yeah! Let’s do it!!! I ain’t going back! 😁
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